Perfil de pessoas diagnosticadas com displasia do desenvolvimento do quadril quando crianças: (in)visibilidade do cuidado de enfermagem

Abstract

Objective: To analyze the profile of people who were diagnosed with Hip Developmental Dysplasia as children and the (in)visibility of nursing care. Methodology: This is a quantitative and qualitative descriptive-exploratory study. Study participants were adults or family caregivers of children who were diagnosed with DDH in childhood. Data collections were performed using information provided in an online form through Google Docs. The study participants were members of the Hip Dysplasia (Subluxation-Dislocation) group, which is linked to a social network (Facebook) and has 3445 members. The quantitative data analysis followed the steps of simple descriptive statistical analysis and the qualitative data followed Bardin's content analysis and grouped into themes that emerged presented as word clouds. Results: We analyzed 63 questionnaires from study participants who were diagnosed with developmental dysplasia of the hip as a child. Of this total, when analyzing the profile of the study participants, it was identified that they were mostly female, of white skin color, with European descent and who had no family history for DDQ. It was possible to identify in the answers about nursing care, the (in) visibility that nursing has in relation to care, since many participants highlighted that this care is not relevant to nursing.Conclusion: This study promotes important contributions to nursing, in view of the (in)visibility of nursing care for these children and families, and the scarcity of references and information on DDQ for the application of Nursing Care Systematization to this population