O cotidiano de crianças com mielomeningocele

Abstract

Myelomeningocele (MMC) is characterized by being a malformation in the nervous system, in which occur a flaw in the closing of the neural tube and as a consequence, congenital or acquired orthopedic deformities, hydrocephaly, bladder dysfunction, urinary incontinence and the postural deficits, which will make it harder to its satisfactory development. The general objective was to investigate in what way the daily life activities of children with MMC are being performed. It was particularly pursued to detect the functionality of children with MMC in the motor level and in self-care activities; to identify the caregiver perception about the daily life of child with MMC; to verify together with the caregiver if there was occupational therapeutic service, as well as its importance in the recuperation of children with MMC. The study was characterized by being of qualitative nature and of quantitative personality due to its collecting instrument, which was the Inventory of Pediatric Evaluation of Incapacity(PEDI). Later, an interview was applied to the caregivers. Two patients, by the Infant Neuropaediatrical Ambulatory of the University Hospital of Santa Maria (HUSM), formed the sample. The period in which the study was performed was in the months of February until June of 2015, in a natural place. Through this study, it was determined losses in children functional development, in the area of self-care due to the motor deficits. In the interview with the caregivers it was noticed an overload due to the intense care with the children, and that the occupational therapeutic services are necessary during the recuperation period. It is suggested a new study from the collected data with the PEDI, which shows the mobility aspects of these children.